A one-day exhibition illuminates the world of untreatable pediatric epilepsy and other disorders, plus art in unexpected places and more local arts news and events
“Right when doctors were telling us there was no alternative, this new alternative showed up,” said local pediatric cannabis advocate Allison Ray Benavides, whose son, Robby, was diagnosed in 2013 with intractable epilepsy — i.e., seizures that were not reduced by medicine. News of the surprising effect of cannabis products on pediatric patients was just starting to emerge — sometimes dramatic reductions in the number of seizures seen each day — and Benavides found the timing to be serendipitous.
For Benavides, that alternative is Charlotte’s Web, a high-CBD, low-THC strain of cannabis named after Charlotte Figi, a Dravet syndrome patient featured in the 2013 CNN documentary “Weed.” It’s a rare, serious and untreatable form of epilepsy that develops in infancy.
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